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dc.contributor.advisorLeger, Robinen_US
dc.contributor.authorHollohan, Marjorie
dc.creatorHollohan, Marjorieen_US
dc.date2021-11-24T14:05:38.000en_US
dc.date.accessioned2021-11-29T11:32:12Z
dc.date.available2021-11-29T11:32:12Z
dc.date.issued2018-01-01en_US
dc.date.submitted2018-11-06T11:30:12-08:00en_US
dc.identifierhonors_theses/175en_US
dc.identifier.urihttp://hdl.handle.net/20.500.13013/651en_US
dc.description.abstractBackground and Significance: Ehlers-Danlos Syndrome (EDS) is a rare, genetic connective tissue disorder that effects the production of collagen in the body, resulting in chronic pain, hypermobility and the need for many medical interventions. There is often a delay in diagnosis into adolescence or young adult life due to variability in multi-organ symptoms and their severity leading to misdiagnosis and uncertainty. Connective tissue holds the whole body together and when the collagen in that tissue doesn’t work the way it is supposed to, it can make changes in the way people live their lives. Methods: A qualitative, phenomenological study was conducted to explore what changes this condition can make to a person’s life. 5 women aged 18-22 were interviewed in person or via video chat. These interviews were later transcribed and analyzed. Results: Themes that emerged from the data were pain limiting daily tasks, the invisibility of the disease, and uncertainty about future of the condition.en_US
dc.titleDaily Living in Young Adults with Ehlers-Danlos Syndrome (EDS)en_US
dc.typeThesisen_US
dc.legacy.pubstatuspublisheden_US
dc.description.departmentNursingen_US
dc.date.display2018en_US
dc.type.degreeBachelor of Science in Nursing (BSN)en_US
dc.legacy.pubtitleHonors Thesesen_US
dc.legacy.identifierhttps://digitalcommons.salemstate.edu/cgi/viewcontent.cgi?article=1175&context=honors_theses&unstamped=1en_US
dc.legacy.identifieritemhttps://digitalcommons.salemstate.edu/honors_theses/175en_US
dc.legacy.identifierfilehttps://digitalcommons.salemstate.edu/context/honors_theses/article/1175/type/native/viewcontenten_US
dc.subject.keywordEhlers Danlos Syndromeen_US
dc.subject.keywordconnective tissue disorderen_US
dc.subject.keywordyoung adultsen_US
dc.subject.keywordhealth related quality of lifeen_US
dc.subject.keywordlived experienceen_US
dc.subject.keywordrare diseaseen_US


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